Adam – Our Story 10/01/10

Dear Friends,

In the fall of 2003, our then 2 year old son, Adam, was diagnosed with Duchenne Muscular Dystrophy. We were dealt a blow with just a simple phrase that no parent ever wants to hear—“your son has Duchenne Muscular Dystrophy, a lethal and progressive muscle disease with no cure.” Our family was devastated. One in 3500 males are diagnosed with DMD every year. By the time they reach 10 to 14 years of age they are confined to a wheelchair. Typically, the battle with the disorder is lost in the early twenties.

Adam is now 9 years old and in the third grade. He is the most joyful child, despite the physical challenges he faces every day. For now, he is walking and he loves all the things most 9 year old boys love—however, he doesn’t play sports, he is much slower than his peers—and sadly, he knows it. This disease has completely changed our family and has robbed us of many of the dreams we had for our youngest son. But where we go from here is what is important, and what we do with this life altering journey is crucial. We have chosen to not bury our heads in the sand but instead to use this road to learn to live fully, love fully, and to always be thankful for the time we have.

We have now established Adam’s Project, Inc., the mission being to provide funding for research for a cure and to undertake “projects” which will be of benefit to all children with special needs. Our first project is to build a fully accessible park in Ridgeland. The mayor of Ridgeland, along with our friend and alderman, Chuck Gautier, and Chris Chance, the Director of Parks and Recreation have assisted us in the planning to carry out this monumental task. The equipment in the playground will provide a means for all children to play alongside their peers, without limits. For those parents who are confined to a wheelchair, they will now have the ability to join their kids and enjoy the park together. All of the equipment can be used by children with and without disabilities, while not having the appearance of a “handicapped” park. The thought of our child not being able to play, climb a rock climbing wall, or swing unassisted in a swing was unacceptable. We knew that we certainly were not the only parents facing that obstacle and we knew that something could be done about it.

Please pray for this endeavor to be a success. Thank you for helping us to dream big for the children of our community and for it to be a catalyst for a cure!

Angela and Drew Malone

Adam’s Project has been approved as a 501(c)(3) by the IRS. All donations are tax deductible!

You can leave a response, or trackback from your own site.

No Responses to this article

Leave a Reply